Practically two years in the past, expectant dad and mom Kirsten and Andrew Beek got devastating information that no couple needs to listen to.
Their little lady, Teliah, had been recognized with a uncommon case of congenital coronary heart illness. The Bertram household learnt about her coronary heart situation throughout Mrs Beek’s 20-week being pregnant scan.
Born on October 18, 2019, Teliah was urgently transferred to Perth Youngsters’s Hospital inside the first 4 hours of her life.
“I used to be fortunate to have a cuddle together with her earlier than she was whisked away,” Mrs Beek mentioned.
The courageous little lady had her first open coronary heart surgical procedure at simply 10 days outdated.
Throughout the operation surgeons linked the tiny affected person’s pulmonary arteries and put in a BT shunt — used to create a pathway for blood to go from the arterial circulation to the lungs — however little Teliah had misplaced an excessive amount of blood. She went into cardiac arrest due to a clot within the shunt.
“That was scary. . . she was gone for about 10-Quarter-hour,” she mentioned.
Fortunately Teliah survived. She was ventilated for 5 days after the surgical procedure, spending two of these days on life help and three weeks on steady airway stress remedy to get better.
Her dad and mom have needed to watch helplessly whereas their daughter was in ache, and endure nights the place they weren’t certain if she was going to be there the following day.
“She was in hospital for seven weeks earlier than she may come house,” she mentioned.
“She’s filled with pleasure and at all times makes me giggle. There’s been so many miracles and little issues to have a good time an extended the best way.”
Teliah not too long ago had her second surgical procedure, however nonetheless requires two extra open coronary heart surgical procedures to finish the Fontan process.
“She’s hit all her improvement and cognitive milestones alongside the best way which is a miracle in itself,” Mrs Beek mentioned.
Now 16 months outdated, Teliah is making nice progress. Her consuming tube was eliminated 4 weeks in the past and she will now eat and drink.
This month the Beek household are hoping to boost consciousness and funds for nationwide well being charity HeartKids by encouraging people to purchase a particular $5 coronary heart beads bracelet in help for households affected by CHD.
The bracelets symbolise the beads that lots of the coronary heart youngsters obtain throughout hospital stays, with every distinctive bead standing for a selected problem, process, or therapy that kids with CHD have endured.
Equally Shoalwater’s Andrea Tasi is additionally asking residents to get behind HeartKids after her son Braxton died in September 2018.
Braxton had his first operation at two days outdated.
He underwent a significant open coronary heart operation at 5 days outdated after which had his third operation 13 years later in August 2018.
At his fourth operation when Braxton was 13, and only a month after his third operation, he went into cardiac arrest for 72 minutes and was positioned on life help.
He fought by way of 9 extra operations together with amputation of his proper leg earlier than passing in September 2018.
To donate, click on here